Gillis named top chamber volunteer

SANDPOINT — Matt Gillis has become a vital part of the 24 Hours for Hank Foundation.

For his work with the foundation, Gillis was named by the Greater Sandpoint Chamber of Commerce’s Board of Directors as the chamber’s top volunteer for June.

24 Hours for Hank is a non-profit organization created in 2008 for now 12-year-old Henry “Hank” Sturgis who was diagnosed with cystinosis, a rare genetic disease affecting approximately 500 people in the United States (mostly children), and about 2,000 people worldwide. This disease causes the amino acid “cystine” to accumulate in the body’s cells. Over time, cystine buildup slowly destroys various organs including the kidneys, liver, muscles, white blood cells, eyes and central nervous system.

Because cystinosis is such a rare disease affecting such a small population, research money is scarce to nonexistent, thus 24 Hours for Hank was born. The hope is to find a cure for Hank and all children suffering from cystinosis.

Gillis was honored at the chamber’s June membership luncheon.

“Over the past 10 years, the 24 Hours of Hank foundation has grown to be a huge part of my life,” Gillis said. “After meeting Hank and the Sturgis family shortly after his diagnosis, there did not seem to be any other option but getting involved. The 24 Hours of Hank events revolve around endurance skiing and biking, with a touch of competitiveness.

“My involvement was a no-brainer! At the end of the day I feel very fortunate for the opportunity to be involved with the foundation and to live in a community that is so gracious in the support.”